Tuesday, 14 October 2014

And still more Chemo...

Day 14 & 15

I know I ramble most of the time but the brain is not really working that well at the moment so this one may be significantly all over the place and for that I do apologise!!!

Have definitely slowed down even more the last couple of days, the pep in my step is just not there.  I may struggle to find the words to get out about the last couple of days but I'll give it my best shot.  I think I've been really strong so far. I love talking to Isabelle & Sebastien and Mum and Dad everyday, they are being so well looked after and spoilt rotten which I don't mind one bit.  They seem to be coping so well, they are such strong beautiful kids but I just miss them so much!!


Chemo - day 2 of 4
Sunday - Chemo (day 2), was a bit slow getting started today, not as many staff scheduled on the weekend but they still do such an amazing job.  Talked to Dr Fedorenko about the woozy feeling the first day so he is getting anti-nausea for me today, much better!  Still feel off but not as bad as first day.  The nurses just seems to run all day with not a lot of extra orderly help on hand, please be patient with them if you come here as they are just lovely.  I used my Google translate to say "thank you so much for looking after me today" and got a beautiful smile from the nurse.

Hot Chips and Ice Cream has been my craving - unfortunately hot chips (close by) are not easy to be found and it was raining so ice-cream was off as well..  The food has been fine most of the time but during 'chemo' it's not always what you want - the fussy fiend is definitely in town and nothing seems to take my fancy at the moment.  Did manage to get through the 2nd season of Girls...


Saying goodbye to Irene
Also managed to get updates on The Block (thanks Trudes), another of my tv shows I love and knew I was going to miss the end of, well that was really not exciting peeps!  So sad for them, especially my faves Michael and Carlene, Michael made the whole show!!

I was sad to goodbye to my new friend Irene.  I'm so happy she is on her way home to her new life with her family!

Monday - Chemo (day 3) up ready early and showered hoping for an earlier start on chemo today but Anastasia paid me a visit to say it's time to move up to the 3rd floor so pack your things slowly my dear and we will move you about lunchtime and then chemo upstairs.  The one morning Paul decided to have a late start and come in at lunchtime but that was all okay I had plenty of time to potter around and pack my bags, easy enough and he arrived at the perfect time to head upstairs. 
My new room - with visitors and nurse!
Isolation rooms have an internal door for germ control
View from hospital corridor into my new room
View from my room door into the corridor and nurses station
Chemo gets set up quickly and I'm hooked up- a new lovely nurse, they are so efficient and I will continue to say this again and again as I feel so privileged to be here and so happy that the staff is so amazing...  So Paul gets to  be bossed around and unpack in the new room!

So the significance of moving upstairs to level 3 is that this is where the isolation rooms are located.  I will have my transplant in this room (on Thursday I think, very exciting!) and then when my levels drop will be isolated (locked up) for 7-10 days.
Out and about around the beautiful Hospital grounds
Managed to get outside today for some fresh air and it was lovely.  I think it was about 15 degrees so a beautiful day.  I've not been outside much but have been able to have a window open in my room, come isolation there is no window open and no outside, I've always thought I'd handle it just fine as I'm quite content with my own company but I think I might be in for a rude awakening.

Paul and fellow patient Bjorn
Paul couldn't help himself - another lift shot!
Paul went on a hot chip hunt but none found to close so it was the pizza again..  It was good, but man am I missing food from home..  I've already given mum & dad orders for what I want to eat first day home - hope you are onto that Dad x

Who's that looking through the window??
Final flush for the day
It's hard to go to bed early when you've had chemo late in the day as you then need to have a 2 flushes, which one was at 7pm and then the other at 11pm, all depends on what time you get started though.  Now I'm settled tomorrow might be earlier.

Finished the evening with a new Series - "Suits", thanks Rache, I like it!!

Last day of chemo tomorrow!

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